NDI

We just found out yesterday that our son has NDI. It was up in the air for awhile. First they didn't know,then they thought CDI, but now we are pretty sure it is NDI. Still it is diabetes insipidus but there are different ways to treat.
The good thing is that now we know which kind he has. The bad is that I think it is harder to control. This kind of DI he cannot take the hormone because his kidney will not accept it. So you can only try your best to manage it and there is no real good way. What they are doing now really isn't working that well. He still isn't gaining weight and throwing up all the time and we are worried.
It is stressful beyond belief. I have never been through something so hard. I have had some hard times in my life and that has not prepared me for this. I think that with the way this has been handled it has had a huge impact on my well being. I mean I know it is rare thing but there are people out there that this hospital could be using and they are not. Hey just admit that you don't know and find someone who does. It seems that easy to this dumb construction worker. But I guess it isn't. There are things at play here that I have no idea about. All I want is just to have our son moving forward.
We have the best pediatrician in the world I think. This woman called us on the fourth of July to tell us the test results. It was a Sunday and a holiday! What a saint! She is the main reason that we are where we are now. We would probably still be thinking he had CDI if it wasn't for her persistence.
So this week we will get with the docs and find out what they wanna do! Wish us luck and pray for us!